Helping patients navigate their way through all this to ensure that they can genuinely provide educated and informed consent to treatment plans demands excellent communication skills from the healthcare … This was not done in this study. Thus, in future studies, patient-and-spouse pairs need to be targeted and surveyed around the same time. Similarly, Dr. Naoto Ueno (@teamoncology), Executive Director of Morgan Welch Inflammatory Breast Cancer Research Program and Clinic at MDACC, did not feel that patients’ use of social media should have boundaries, as long as they are truthful about what they share online. Then, items with mismatched labels were labeled through discussion between the psychologists. Thus, in future studies, more accurate medical data need to be collected by conducting questionnaire or interview surveys at medical institutions in combination with review of medical records. A common explanation is that socially isolated individuals fare worse due to reduced instrumental support (i.e., assistance meeting the demands of treatment). 2015;6:19–51. 2013;60:178–87. This brings back … This paper presents a psychometric analysis of the Problems Checklist with a view to assessing its usefulness as a screening tool for social problems in oncology. http://creativecommons.org/licenses/by/4.0/, http://creativecommons.org/publicdomain/zero/1.0/, https://doi.org/10.1186/s12904-018-0338-9. 2627 Doctors do not recognize about 35% of these cases and many patients remain untreated. Springer Nature. Developing a model of decision-making about complementary therapy use for patients with cancer: A qualitative study. Ussher et al. Payne S, Smith P, Dean S. Identifying the concerns of informal carers in palliative care. 2008;134:1–30. Google Scholar. The survey of Quinten et al further showed that the domains of HRQOL impaired by cancer treatment vary with age: whereas younger patients reported more about impaired social and role functioning and financial problems, older patients reported on appetite loss, constipation and reported about impaired physical functioning, but of less pain than younger patients.13–15 However, this deficit … Tokyo: Chuokoron-Shinsha; 1970. Finally, scores on each subcategory were calculated by dividing the total score by the number of items in each subcategory. For the combination of a male patient and a female spouse, the degree of difficulty perceived by the spouses was as high as that of difficulty perceived by the patients for “difficulty in seeking expert advice on the disease state and treatment (lack of opportunities to consult for patient transfer arrangement, hospital selection, second opinion, psychological counseling, etc. Distress screening in the clinical environment can be used to detect persons who may benefit from additional emotional support. Muzzatti B, Annunziata MA. The development of “ultrabrief” screening … Soc Sci Med. Psychooncology. Current Problems in Cancer seeks to promote and disseminate innovative, transformative, and impactful data on patient-oriented cancer research and clinical care. Please check your email for instructions on resetting your password. PubMed Central  For the patient survey, in January 2010, we screened all registered members of the panel of internet-survey company A and selected those who developed cancer within the previous 5 years and experienced social problems. Social support has been found to be empirically related to influencing health outcomes. The datasets used and/or analyzed during the current study are available from the corresponding author on reasonable request. That is why we prepared the scale using the KJ method and confirmed the reliability with an α coefficient. This may be due to lack of a suitable questionnaire. Support Care Cancer. For the spouse survey, in the same manner in November 2016, we selected spouses of patients who developed cancer within the previous 5 years. J Cancer Surviv. Li Q, Loke AY. It is … PubMed  Assessing the social impact of cancer: a review of available tools. For each subcategory, α coefficient was calculated to evaluate internal consistency. Supports open access. Managing symptoms and side effects; Counselling and talking; Money and travel; Death and dying; Cancer Chat forum; Health Professionals. Health care providers should show sufficient concern for both patients and their spouses, particularly young and female spouses. 1 in 2 people will develop some form of cancer during their lifetime. Consequently, patients often face problems in various aspects of social life, such as family … The internet survey company we used is a Japanese company specializing in academic research. Siminoff LA, Wilson-Genderson M, Baker S Jr. Depressive symptoms in lung cancer patients and their caregivers and the influence of family environment. Screening for social problems has not become part of routine oncology practice. As cancer clinics are busy, social problems assessment would have to meet requirements of brevity, simplicity, relevance, practical utility and ease of scoring. A cancer diagnosis affects every area of a person’s life. Breast cancer is no longer a simple disease to explain, and patients already experiencing emotional turmoil enter a strange new world of esoteric language and concepts. Br J Cancer. Factor analysis produced a four‐factor structure with components labelled daily living, relationships, economics and emotions. The psychological problem grows more serious in cases of relapsing tumours, or those at an advanced stage. Takeuchi, T., Ichikura, K., Amano, K. et al. Spouses’ experience of caregiving for cancer patients: a literature review. Psychol Bull. Recent studies have increasingly reported on physical problems associated with cancer and its treatment and psychological problems, such as anxiety and depression. Although the debilitating physical symptoms of cancer have long been known, the psychological and social impacts of cancer have become the subject of examination only relatively recently. The present study aimed to identify cancer-associated social problems from the perspectives of both patients and their spouses and to compare and analyze differences in their problems. Duijts SF, van Eqmond MP, Spelten E, et al. ),” “complaint with health care providers,” “lack of information on treatment and disease state,” “lack of information on self-care (lack of knowledge on nutritional needs of patients or how to deal with anxiety),” “concerns for family members,” “lack of local support services,” “difficulty in making financial arrangements,” and “lack of information on welfare services available during treatment (lack of knowledge on the nursing-care insurance system or nursing-care facilities and equipment).” Generally, compared to men who take care of their wives with cancer, women who take care of their husbands with cancer have higher mental morbidity (high levels of distress, depression, and anxiety, and a low level of mental health), physical morbidity (low physical health score, decreased physical function, and loss of physical fitness), and social morbidity (low satisfaction in marriage and limited social support) [12, 23, 24]. By using this website, you agree to our This may be due to lack of a suitable questionnaire. This paper discusses the importance of identifying the psychological and social concerns of breast cancer patients in the medical setting, and assisting them in obtaining appropriate psychosocial services. Cancer diagnosis and treatment is extremely expensive. Copyright © 2001 John Wiley & Sons, Ltd. Explore journal content Latest issue Articles in press Article collections All issues. Cancer does not choose its patients. Risk factors for mood disorders, adjustment disorders, and anxiety disorders. All authors read and approved the final manuscript. Psychooncology. Life situation and psychosocial care of adolescent and young adult (AYA) cancer patients – study protocol of a 12-month prospective longitudinal study. One third of patients with cancer will experience distress which requires evaluation and treatment, and the most common psychiatric disorders are depression, anxiety disorders and adjustment disorders. Patient-Reported Outcome Measures for the Identification of Supportive Care Needs in People With Lung Cancer. 2002;87:1099–104. Quinn GP, Goncalves V, Sehovic I, et al. A spectrum of hidden morbidities among spousal caregivers for patients with cancer, and differences between the genders: a review of the literature. Siegel K, Raveis VH, Houts P, Mor V. Caregiver burden and unmet patient needs. As several studies have indicated that social problems experienced by cancer patients have an important impact on their mental health and quality of life [6,7,8,9,10], the need for support for their social problems, as well as the mental care of patients, has been increasingly recognized. Then, they indicated that the mental distress of spouses or partners gradually increases after diagnosis and becomes more strongly correlated with that of patients. In the present study, to investigate difficulty perceived by spouses regarding the social problems of patients, we asked spouses to answer the question, “Have you ever experienced any difficulty concerning the following matters at home, at work, or in your community because of the disease (cancer) and treatment of the patient (your spouse)?” on the 60 items in the same manner. ).” Patients and partners are interdependent in that cancer impacts on their shared life, both emotionally and practically. Cancer. In the young subgroup, the degree of difficulty perceived by the spouses was as high as that of difficulty perceived by the patients for all subcategories except “difficulty in adapting to changes in the social environment (I feel that my appearance has changed or that I am treated differently).” People aged 39 years or younger, who were classified as the younger generation in the present study, are called “adolescents and young adults (AYA).” Cancer patients in the AYA generation experience, after diagnosis and treatment, not only difficulties associated with social relationships, work, academic background, property, etc., but also many physical and psychosocial problems, such as interruptions to romantic and/or intimate relationships, reconsideration of family planning, infertility, and body image dissatisfaction [19, 20]. Screening for social problems has not become part of routine oncology practice. Most patients who have survived cancer will feel both a sense of “survivor’s guilt” and a sense of doom whenever there is a complication or progression in a patient who has similar disease. Part of Unmet social and spiritual needs. Recent studies have increasingly reported on physical problems associated with cancer and its treatment and psychological problems, such as anxiety and depression. Regarding other background factors, cancer sites varied in both the patient and spouse groups, while most participating patients and patients of most participating spouses were being treated or followed up after the completion of treatment. These effects are magnified in the presence of any psychological and social stressors that predate the onset of … View aims and scope. Development and evaluation of an instrument to assess social difficulties in routine oncology practice. This may be due to lack of a suitable questionnaire. Cite this article. Eur J Oncol Nurs. However, no conclusion has been reached on whose distress is more severe because there are conflicting reports. Data were collected by KA, WT, KH, analyzed by KI, and interpreted by TT and KI. Article  Little is known about the social problems experienced by cancer patients in non‐Western countries. Based on the calculated propensity scores, the patient and spouse groups were matched in a 1:1 ratio using nearest neighbor matching by sampling without replacement. Subjects were 259 patients and 259 patients’ spouses and all cancer types were selected. Regarding the covariates, the frequency distributions of sex, age group, and presence or absence of recurrence were completely matched between the patient and spouse groups, confirming that the groups were well balanced and matched. Psychooncology. Patients who have a high level of distress when they are diagnosed with cancer are more likely to have continued high levels of distress after their diagnosis. (in Japanese), Kawakita J. Zoku Hassoho [Aboduction: part two]. Social problems in oncology. Table 2 shows the frequency distributions of the covariates and other background factors for each group. Diagnosis of and treatment for cancer may not only create physical and emotional difficulties for patients but may also have an impact on social aspects of patients' lives. Validation of a needs‐based biopsychosocial distress instrument for cancer patients. [25] attributed this to the fact that women caregivers are positioned as all-encompassing expert careers, expected to be competent at decision-making, a range of physical caring tasks, and provision of emotional support for the person with cancer. Quality of life in adolescent and young adult cancer patients: a systematic review of the literature. Difficulties with relationships are harder to measure and results from the analysis suggest that this is an area that warrants further investigation. It's not that cancer is catching, it's that people get scared. Screening for Distress and Unmet Needs in Patients With Cancer: Review and Recommendations. Hagedoom M, Sanderman R, Bolks HN, et al. 2017;17:82. However, we assume that the degree of “difficulty in seeking expert advice on the disease state and treatment” in the spouses was as high as that in the patients because spouses were greatly involved in treatment of patients soon after diagnosis. Meanwhile, in the younger subgroups (≤39 years), the mean difficulty scores in the spouses increased for all subcategories except “difficulty in adapting to changes in the social environment.” The degree of difficulty was comparable between patients and spouses (Table 4). Although patients had higher scores on most subcategories, young spouses aged 39 or younger and female spouses had difficulty scores as high as the corresponding patients on many subcategories. What are the biggest barriers to health care for cancer patients? Consequently, patients often face problems in various aspects of social life, such as family life, relationships with people around them, work, income, leisure activities, and relationships with health care providers [1,2,3,4,5]. Teens are often establishing their own identities at this time and developing social, emotional, and financial independence. Second, because of arrangements for this study and funding issues, several years passed between the patient and spouse surveys, and we were unable to collect data from patient-and-spouse pairs. My husband and I rely on each other. Section of Psychiatry and Behavioral Sciences, Graduate School of Medical and Dental Sciences, Tokyo Medical and Dental University, 1-5-45 Yushima, Bunkyo-ku, Tokyo, 113-8519, Japan, Section of Liaison Psychiatry and Palliative Medicine, Graduate School of Medical and Dental Sciences, Tokyo Medical and Dental University, Tokyo, Japan, Kanako Ichikura, Kanako Amano & Wakana Takeshita, Graduate School of Human Sciences, Waseda University, Saitama, Japan, Department of Medical Oncology, Kanazawa Medical University, Ishikawa, Japan, Department of Health Science, School of Allied Health Sciences, Kitasato University, Kanagawa, Japan, You can also search for this author in Help patients think through the impacts of their own anonymity and allows participants to without! Situation and psychosocial care of adolescent and young adult cancer patients of burden as a predictor of depression with depression. 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